A little more history.....



Add caption

 So we came home from the second heart surgery and then celebrated his 1st birthday a few days later.  It was a huge milestone because as you know they said he wouldn't survive to turn one. But he did....
   We continued to have Early Interventions for Joseph.  He was recieving PT, OT, Develpoemental Therapy and Special Instruction.  Prior to his second OHS he LOVED his binkie.  Once he was extubated he didn't want anything to do with it.  he would put toys in his mouth and blankets but that was all.  I started giving him hard thing, pretzels, chips, and cookies. He started to lick them and would occasionaly put it in his mouth.  But that was the limit. And that is about where we are now.  He will scream when we try to feed him with a spoon or offer him a drink of something.  He had a lot of sensory stuff.  He hated to have anything on his hands.  We worked thru that and now he will play in pudding and yogurt.  He will ask for "num nums" but he ends up feeding the cat !!  Oh well, small victories. 
     So now he continues to be 100% tube fed.  He gets his formula but in addition he also gets blended food and juice thru his tube.  So I hope you enjoy reading his journey from button to eating....