Hope this finds everyone well. Tomorrow is a very big day....August 23, 2009 was the first day Joseph came home from the hospital. This was after 180 days, 3 major operations and many prayers answered we were home !!! It has been a wild crazy ride but I wouldn't trade a minute of it.
|Going home !!!!|
Ok so an update....
We went to the CRS Ortho Clinic to get J's braces checked and to let them see how he has done after the botox injection last May. He got his weight and height checked.....He was 35 pounds and 37 1/2 inches....he gained 2 pounds and 1 1/2 inches in about 6 months !!! I know, I know INSAINE !!
So on to the feeding...ugh
So we tried to do a wean....massive FAIL !! So we start a different road...
Thru an answered prayer we were able to get a Blendtec blender for J. This blender is AmaZing! So we are now giving J whole, blended food via his tube. It is called a blenderized food diet. This is how many people with feeding tubes were fed before formula companies got involved. We started his new diet on Saturday. So far so good, he is tolerating more during the day and is only getting about half the amount of fluid overnight at this point. Here is a list of the foods he has been getting:
- Baby carrots (raw)
- Raw Oatmeal
- Soy yogurt
- Blackstrap Molasssas
We have a appointment with a new GI doc in Atlanta on Wednesday.....I will update after !!